Additional resources
Useful website and groups for information about endometriosis
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The Center for Endometroisis care: https://centerforendo.com/
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Endometriosis foundation of America: https://www.endofound.org/
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Endopædia: http://endopaedia.info/
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Speak Endo: https://www.speakendo.com/
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Facebook group: Nancy's Nook
Brochures and infographics for endometriosis created by URiGEM 2020 team
Acknolwedgment
The team would love to sincerely appreciate all the physicians, foundations and organizations that helped us throughout the process. Our project would not come as far as it is now without their generous support. We would love to acknowledge their help and effort through this page
Dr. Ashley Gubbles
Doctor Ashley Gubbels is a board-certified gynecologist at the University of Rochester who is trained in minimally invasive gynecologic surgery with a special focus on chronic pelvic pain. She stressed the importance of educating teenagers and physicians about endometriosis as there is not enough accessible material presented targeting these two groups about endometriosis education. She also suggested to present the material through brochures or other accessible format and distributing them to clinics and health offices. These suggestions let the team develop Endo Edu to create educational materials, which include a website, infographics, and brochures that contain information for endometriosis. Dr. Gubbels has generously offered to revise our educational material multiple times and through the help of Dr. Gubbels, the team is able to create contents that are accurate and meaningful to the community. Thank you, Dr. Gubbels!
Heather Guidone, BCPA is the Surgical Program Director of Center for Endometriosis Care. She is also someone who suffered and lived with advanced endometriosis. Heather has worked in the endometriosis community for nearly 30 years, garnering an international reputation for her tireless efforts to advance various clinical, advocacy, legislative, media, research, education and policy initiatives on the disease. Heather not only reviewed our educational material, including endo edu website and the brochure to provid valuable suggestions, but also helped us promote the material in Center for Endometriosis Care. Her encouragement, enthusiasm and constant support for our team and the project truly motivated and inspired us. Thank you!
Endometriosis Foundation of America (Endofound) is a non-profit organization that aims to increase awareness of, provide advocacy, facilitate medical training, and fund endometriosis research. Endo Found has helped the team tremendously through reviewing our material and collaborate with us through promoting the material in their social media. Thank you Endofound!
Diva cares is the community impact section of Diva Cup, a menstrual cup that has been featured in the menstrual health hub and has worked very hard on promoting the use of cups in different communities to reduce the waste resulting from disposable hygiene products.
Diva Cares representative Sophie Zivku stressed on the importance of providing educational material about the general anatomy and physiology of the female reproductive system as most patients and even some physicians lack proper knowledge concerning its health and possible disorders. Ms. Zivku also pointed to the importance of providing educational materials on the proper ways of using hygiene products. Their suggestions and advice helped us to make the project more holistically.
Recognitions
Endo-Education could only have happened with the efforts from the rest of our University of Rochester iGEM team as a whole, including our team members, teaching assistants, advisors and supporting physicians, as such special thanks to:
Our teaching assistants Lynn Sidor, Ram Gona and Roger White.
Our advisors Anne Meyer, Nancy Chen and Omar Soufan